What is ME CFS?
Is ME CFS Invisible?
Whether ME CFS is invisible or not is a question I am continually conflicted in answering. For some reason I can’t seem to make up my mind on this. Is ME CFS invisible? In some ways, yes, it’s completely invisible. But at the same time, my mind is saying, no, it’s as visible as anything […]
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Grief and M.E.
I’m writing this article from my bed. I’m lying down flat, unable to sit up without overwhelming dizziness. It’s sunny outside, my daughter and hubby are running around enjoying the fresh air. I so desperately wish I could join them. I hate missing time with my family. But unfortunately, that’s not going to happen today. […]
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Life with M.E. – A Post for M.E. Awareness Week
This is a post written originally for PosAbility Magazine, published 11th May 2020 to coincide with M.E. Awareness Week. I had very much intended to write a separate blog post for M.E. Awareness Week but with the extra energy levels needed to keep our toddler entertained during lockdown, and the subsequent crashes, worse than normal, […]
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BOOK REVIEW: Supercharged Superhero by Gemma Everson
Back in November 2019, I was contacted by Gemma Everson. An author, wife, and mother, she had written a book – Supercharged Superhero – a story of her family coming to terms with M.E. The book was written for children but at the same time explained an illness, fraught with misconceptions, to adults too. Gemma […]
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How to Support Someone with M.E.
Let me start off by saying it’s not just the people with M.E., or any chronic illness for that matter, that suffer. Those closest to them suffer too. It must be really hard, and really frustrating, to see the person you love struggling. I imagine it’s hard to know what to do to help. So, […]
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The Spoon Theory Explained
In today’s post I want to explain The Spoon Theory, first created by Christine Miserandino. Read her original explanation here.
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Getting diagnosed with Chronic Fatigue Syndrome (ME CFS)
It sounds strange to say I was relieved to be diagnosed with chronic fatigue syndrome (ME CFS). Why be relieved to be told you’ve got a chronic illness that has no cure and no universal treatment? (Please be wary of those sites that offer a “cure” in exchange for vast sums of money.) Why be […]
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What is Chronic Fatigue Syndrome (ME CFS)?
Myalgic encephalomyelitis (M.E.) or chronic fatigue syndrome (CFS) is a long-term, debilitating condition characterised by a combination of symptoms related to the immune, neurological and nervous systems. It is classed as a neurological condition by the World Health Organisation (G93.3). Each person with M.E./CFS will have a different combination of symptoms individual to them.
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