A Letter to My Nearest and Dearest

To my wonderful friends and family (you know who you are),  I want to attempt to say thank you to you all but also sorry at the same time by writing this open letter. I’m not entirely sure I’ll manage but here goes. For those who haven’t met me in person but have supported me […]

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Hiring a Wheelchair

(AD: This post is sponsored by Mobility Hire at http://www.mobilityhire.com. Mobility Hire are the UK’s Number 1 supplier of mobility equipment on both short and long term hire nationwide.) Hiring a wheelchair is something you don’t often see written about in the public domain. Most people have purchased their wheelchairs, whether they be manual or […]

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Parenting and Pacing

Parenting and pacing. 2 words that really sound like they shouldn’t go together. How on earth does one learn to pace oneself as a parent with ME CFS? Parenting is tiring, there’s no doubt about that. It involves a lot of energy. How do you ration the *limited* energy you have as a chronically ill […]

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Why Christmas May Not Be the Most Wonderful Time of the Year

Warning: this post may come across a bit Scrooge-like. If this offends you, stop reading here.  “It’s the most wonderful time of the yearWith the kids jingle bellingAnd everyone telling you be of good cheerIt’s the most wonderful time of the year…” Andy Williams As we go about our daily business in the month of […]

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Toxic Positivity – Why is it so dangerous?

I’ve been meaning to write this blog post for a while but never quite had the words. Hopefully the words below make sense! I’m posting this in December but it’s got nothing to do with Christmas. Although, saying that, the sentiments could definitely be applied to the festive season.  Related: Mummying and M.E. – Surviving […]

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Surviving My First Christmas with ME CFS

This post was written for Leo | The Anxious Teacher at https://theanxiousteachtwo.home.blog as part of #Blogmas. The fairy lights are twinkling. Christmas trees are popping up left, right and centre. Shops and supermarkets are pushing their stock of all things gift-like. It’s not yet December but the Christmas period is well and truly upon us.  […]

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Things We’d Love to Tell our Recently-Diagnosed Selves

Recently I started writing about my reflections over the last year. Since falling ill, many things have happened. Starting my blog. Getting my first powerchair. And it’s really got me thinking: if I could give advice to my newly diagnosed self what would it be? Things are so massively different since then, some in really […]

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Isolation and M.E.

This article was written for the disability charity Scope, on the theme of isolation. You can check the published article out here: Scope Online Community – 25th November 2019 – All-encompassing isolation when living with a chronic illness I’m Sophie and I live with several chronic illnesses, the most disabling of which are my M.E. […]

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GUEST POST: Leo | The Anxious Teacher – My Favourite 26 Self-Care Ideas

Leooooo | The Anxious Teacher is a full time teacher and Mental Health and Lifestyle blogger. To read more of her work check out her website: http://www.theanxiousteachtwo.home.blog Follow her on Twitter: www.twitter.com/theanxiousteac2  Instagram: www.instagram.com/leoooooallen  And to help support her advocacy for Mental Health and BPD buy her a coffee on www.ko-fi.com/theanxiousteacher My Favourite 26 Self-Care Ideas For Those […]

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16 Gift Ideas For People With Chronic Illness

NB: This post contains affiliate links, which means if you choose to purchase something through one of the links below, I will earn a very small commission at no extra cost to you.  Stuck on what to buy your chronically ill loved one this Christmas? Look no further. This is basically a list of both […]

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Celebrate #FriendshipFriday with Kidscape and Elmer the Elephant

GIFTED: The Elmer the Elephant socks I write about in this post were gifted to me by SockShopUK in exchange for a charity post and review of these socks for Friendship Friday.  Unleash your inner Elmer the Elephant on Friendship Friday with these jazzy charity socks from SockShopUK. Help to raise money and awareness for […]

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Dear PEM

This post is inspired by Pippa Stacey’s book “Dear Chronic Illness”.  “Dear Chronic Illness” features a series of “letters” written by sufferers of various chronic illnesses, including M.E., Fibromyalgia and Ehlers-Danlos Syndrome. Each letter is written to each condition, each letter beautifully written.  Click here to buy Dear Chronic Illness, by Pippa Stacey The book […]

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Essentials for Getting Out and About as a Wheelchair User

Out on a shopping trip recently with a good friend, she suggested I put together a list of the things I’ve learnt to be essential when getting out and about.  You see I’ve always been fiercely independent, not thinking twice about the ability to leave the house, pop to the shops, buy a few bits […]

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Invisible Illness Week

This article was written for the ME Association as part of their Make ME Visible campaign during Invisible Illness Week. During Invisible Illness Week, we think about all those illnesses that aren’t the most obvious to those around us. Depression, anxiety, fibromyalgia, Ehlers Danlos, and obviously the reason we’re all reading this: M.E. The term […]

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PIP Appeal

Appealing a PIP Decision

The process of applying for Personal Independence Payment (PIP) in the UK has been marred with controversy, leaving many who are perfectly entitled to the benefit too scared to even apply. For those new to the system, PIP has replaced Disability Living Allowance as the non-means-tested disability benefit in the UK. PIP is a benefit […]

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6 Things I’ve Learnt Since Using a Powerchair

Anyone looking from the outside might wonder why I have so many wheels to my name. No, not fancy cars, but my collection of mobility aids. I take no shame in needing all these, as each and every one has a different purpose. Related: Mummying and M.E. – Life On Wheels To keep my mental […]

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Quotes I Like to Live By: Part 2

Be gentle with yourself. You’re doing the best you can.  This is part 2 of my “quotes I like to live by” series. Or “naff motivational quote number 2”.  If you haven’t yet read Part 1: “Nothing Changes if Nothing Changes” do so now. “Be Gentle With Yourself, You’re Doing the Best You Can” is […]

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Quotes I’ve Learnt to Live By

If you follow me on Instagram (@mummyingme), you’ll know I’m a fan of a good motivational quote.  Click here to follow me on Instagram @mummyingme With this in mind, I decided to create a “series” of blog posts. Each one will describe one of my favourite quotes and what they mean to me. This post […]

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REVIEW: Smol Laundry Capsules

Disclaimer: This is an affiliate post meaning if you choose to sign up to Smol products I get free stuff. Wonderful eh. Note: I only work with brands or put my name to brands, that I truly believe will be used and enjoyed by my readers. I can’t honestly remember what it was I saw […]

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Things I’m Grateful For This Week

I’ve wanted to think recently about what and who I’m grateful for. There have been many people instrumental in avoiding me plunging into a state of depression recently and I want to say thank you to those people.

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Introduction to the UK Disability Benefits System

(This post will be updated regularly as I am in the process of appealing a PIP decision. Pop back to hopefully see changes soon.)  Let’s start with the facts:  According to Scope UK, 13.7 million people in the UK are disabled. This is made up of around 6% of children, 19% of working age adults, […]

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5 Stages of Coming to Terms with a Chronic Illness

It is known that there are 5 stages of grief when coming to terms with any kind of loss. These stages of grief are most commonly associated with bereavement but can also be applied to coming to terms with a chronic illness. 

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“What Do You Do?”

Why is “what do you do” one of the first questions we ask someone? My “what do you do?” story I’ve been thinking about this question this week as for the first time in 10 years I haven’t been clambering onto tables, blu-tacking endless displays high up on the walls, deciding seating plans, brandishing a […]

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REVIEW: ZSL Whipsnade Zoo

Click here to buy your entry tickets and / or membership  I have spent months and months boring my (long-suffering) friends and family about how “I just want to be able to take E to the zoo!”  Quite why it was the zoo I was so obsessed with I have no idea but through the […]

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My Crash First Aid Box

I wrote recently about how important self-care is, not just for those with chronic illness but for everyone.   Related: Mummying and M.E. – Why Self-Care is So Important Self-care can look different to each individual, from a certain exercise routine, to a certain diet. For me, self-care is about pacing myself through a day, making […]

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A Photo That Speaks a Thousand Words

  In this article, I’m writing about a photo of me and my daughter. A simple photo it most definitely is, but one that when I saw it, hit me with both sadness and joy at exactly the same time. How can one photo do that I hear you ask?

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Essentials for your suitcase

Travelling with a Disability Part 2 : 6 Essentials for Your Suitcase

As I promised, I would write a series of posts after getting back from holiday, to share some tips that helped me, in the hope they may help you too.  (If you haven’t read it already, check out part 1 to this post: tips for travelling with a disability.)

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Why I'm not ashamed to be disabled

Why I’m Not Ashamed To Be Disabled

As I described in my first blog post, I explained how I used to be full of energy. I used to be able to walk for miles at a time, not thinking twice about just popping down to the shops to meet a friend for coffee. My maternity leave was spent between buggy fit classes, […]

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Travelling with a Disability

If you’re disabled like me, (and no I’m not ashamed of the fact I’m disabled, post on that to follow) certain things require planning and a bit of extra help.  Travelling is one of those things.    Luckily there is plenty of help out there when travelling so I thought I’d put together a post of […]

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New symptoms and trying to get them under control

New Symptoms and Trying To Get Them Under Control

This week saw me going to the doctor for yet another set of new symptoms. Living with M.E./CFS presents a whole combination of symptoms, some of which you get used to, some of which you aren’t sure about.  Whenever I go to the doctor, I’m never convinced whether they’ll just say my new symptoms are […]

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6 Things I Wish I Could Tell My New Mummy Self

6 Things I Wish I Could Tell My New-Mummy Self

I found the newborn days really hard. It’s hard to admit that as we’re meant to, as new mums, be relishing in the wonders of it all. Be tagging everything on social media with the hashtag #blessed. Don’t get me wrong, I love our daughter to bits. She’s my world. But boy were those early […]

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Book recommendations for living with ME CFS

My Must-Reads

Disclosure: Some of the links below are affiliate links meaning, at no additional cost to you, I will earn a commission if you click through and make a purchase. There are books out there which promise a “cure” or the “best way” of getting rid of every chronic illness out there. However, as yet, I […]

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What is shopmobility

Shopmobility and some of the other services available out there

Before being diagnosed with chronic fatigue, I had never heard of Shopmobility. I’d seen people riding through town centres on mobility scooters but had simply assumed they’d come from home on them. I certainly didn’t know how you went about getting hold of one if you needed it.   I certainly didn’t know that Shopmobility schemes […]

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Wheelchair with ME CFS

Life on Wheels

I don’t know about you, but I had always viewed the use of a wheelchair solely for those with spinal cord injury / paralysis or the elderly. I certainly hadn’t thought it was just as acceptable for those with invisible illness such as chronic fatigue syndrome (ME CFS).  For months, prior to my diagnosis, I […]

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6 Rules for Parenting with Chronic Fatigue Syndrome

6 Rules for Parenting with Chronic Fatigue Syndrome (ME CFS)

I probably ought to start with a disclaimer for this one. I am NOT (amongst many things!) an organic-cooking-from-scratch, arts-and-crafts, reusable-nappies type of mummy. If that’s you, serious hats off to you, I’m very impressed. That’s just not me. I’m a finding-the-shortcuts-in-life, winging-my-way-through-life type of mummy. It’s just the way I have to live to […]

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How to support someone with chronic fatigue syndrome

How to Support Someone with Chronic Fatigue Syndrome

Let me start off by saying it’s not just the people with chronic fatigue syndrome, or any chronic illness for that matter, that suffer. Those closest to them suffer too. It must be really hard, and really frustrating, to see the person you love struggling. I imagine it’s hard to know what to do to […]

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Getting Diagnosed with ME CFS

Getting diagnosed with Chronic Fatigue Syndrome (ME CFS)

It sounds strange to say I was relieved to be diagnosed with chronic fatigue syndrome (ME CFS). Why be relieved to be told you’ve got a chronic illness that has no cure and no universal treatment? (Please be wary of those sites that offer a “cure” in exchange for vast sums of money.) Why be […]

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What is chronic fatigue syndrome

What is Chronic Fatigue Syndrome (ME CFS)?

Myalgic encephalomyelitis (M.E.) or chronic fatigue syndrome (CFS) is a long-term, debilitating condition characterised by a combination of symptoms related to the immune, neurological and nervous systems. It is classed as a neurological condition by the World Health Organisation (G93.3). Each person with M.E./CFS will have a different combination of symptoms individual to them.

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My Chronic Fatigue Story

My Story

I used to be healthy (ish!) Full of energy. I used to think nothing of working a 10+ hour day, 5 days a week, going to a 2-hour rehearsal twice a week after work, and most other nights going for a drink or 2 at the local. Weekends were spent socialising, walking; energy was seemingly […]

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“Mum Guilt” with Chronic Illness

Mum guilt is one of those things that the majority of mums live with. We seem to worry about every aspect of our child’s upbringing. Are we feeding them the right things? Are they watching too much TV? Are we stimulating them enough or even too much? Mum guilt almost seems to be a rite […]

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