Month: July 2019
Shopmobility and some of the other services available out there
Before being diagnosed with chronic fatigue, I had never heard of Shopmobility. I’d seen people riding through town centres on mobility scooters but had simply assumed they’d come from home on them. I certainly didn’t know how you went about getting hold of one if you needed it. I certainly didn’t know that Shopmobility schemes […]
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Life on Wheels
I don’t know about you, but I had always viewed the use of a wheelchair solely for those with spinal cord injury / paralysis or the elderly. I certainly hadn’t thought it was just as acceptable for those with invisible illness such as chronic fatigue syndrome (ME CFS). For months, prior to my diagnosis, I […]
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6 Rules for Parenting with Chronic Fatigue Syndrome (ME CFS)
I probably ought to start with a disclaimer for this one. I am NOT (amongst many things!) an organic-cooking-from-scratch, arts-and-crafts, reusable-nappies type of mummy. If that’s you, serious hats off to you, I’m very impressed. That’s just not me. I’m a finding-the-shortcuts-in-life, winging-my-way-through-life type of mummy. It’s just the way I have to live to […]
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How to Support Someone with M.E.
Let me start off by saying it’s not just the people with M.E., or any chronic illness for that matter, that suffer. Those closest to them suffer too. It must be really hard, and really frustrating, to see the person you love struggling. I imagine it’s hard to know what to do to help. So, […]
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The Spoon Theory Explained
In today’s post I want to explain The Spoon Theory, first created by Christine Miserandino. Read her original explanation here.
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Getting diagnosed with Chronic Fatigue Syndrome (ME CFS)
It sounds strange to say I was relieved to be diagnosed with chronic fatigue syndrome (ME CFS). Why be relieved to be told you’ve got a chronic illness that has no cure and no universal treatment? (Please be wary of those sites that offer a “cure” in exchange for vast sums of money.) Why be […]
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What is Chronic Fatigue Syndrome (ME CFS)?
Myalgic encephalomyelitis (M.E.) or chronic fatigue syndrome (CFS) is a long-term, debilitating condition characterised by a combination of symptoms related to the immune, neurological and nervous systems. It is classed as a neurological condition by the World Health Organisation (G93.3). Each person with M.E./CFS will have a different combination of symptoms individual to them.
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My Story
I used to be healthy (ish!) Full of energy. I used to think nothing of working a 10+ hour day, 5 days a week, going to a 2-hour rehearsal twice a week after work, and most other nights going for a drink or 2 at the local. Weekends were spent socialising, walking; energy was seemingly […]
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