Year: 2019

“Life with M.E.” – Reflections on the last year

( This article was written for my local church’s parish magazine. I don’t often mention church, or God, in my writing as I know not everyone believes. However, joining my local church and attending weekly services, has massively helped me in coming to terms with M.E. I have met some really lovely people there and […]

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Celebrate #FriendshipFriday with Kidscape and Elmer the Elephant

GIFTED: The Elmer the Elephant socks I write about in this post were gifted to me by SockShopUK in exchange for a charity post and review of these socks for Friendship Friday.  Unleash your inner Elmer the Elephant on Friendship Friday with these jazzy charity socks from SockShopUK. Help to raise money and awareness for […]

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Dear PEM

This post is inspired by Pippa Stacey’s book “Dear Chronic Illness”.  “Dear Chronic Illness” features a series of “letters” written by sufferers of various chronic illnesses, including M.E., Fibromyalgia and Ehlers-Danlos Syndrome. Each letter is written to each condition, each letter beautifully written.  Click here to buy Dear Chronic Illness, by Pippa Stacey The book […]

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What an M.E. Crash Feels Like

NB: This is just my experience of an M.E. crash. This description is not going to be the same for everyone. My daughter is talking to me this morning, but I don’t understand what she’s saying. My husband has been doing the washing up downstairs, opening and closing cupboards, each one producing that bang sound […]

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Essentials for Getting Out and About as a Wheelchair User

Out on a shopping trip recently with a good friend, she suggested I put together a list of the things I’ve learnt to be essential when getting out and about.  You see I’ve always been fiercely independent, not thinking twice about the ability to leave the house, pop to the shops, buy a few bits […]

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Invisible Illness Week

This article was written for the ME Association as part of their Make ME Visible campaign during Invisible Illness Week. During Invisible Illness Week, we think about all those illnesses that aren’t the most obvious to those around us. Depression, anxiety, fibromyalgia, Ehlers Danlos, and obviously the reason we’re all reading this: M.E. The term […]

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PIP Appeal

Appealing a PIP Decision

The process of applying for Personal Independence Payment (PIP) in the UK has been marred with controversy, leaving many who are perfectly entitled to the benefit too scared to even apply. For those new to the system, PIP has replaced Disability Living Allowance as the non-means-tested disability benefit in the UK. PIP is a benefit […]

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Why Being Fatigued Is NOT The Same As Being Tired

I regularly hear the word “fatigue” being used interchangeably with the phrase “being tired”. It is a common misconception that the 2 words are the same. 

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6 Things I’ve Learnt Since Using a Powerchair

Anyone looking from the outside might wonder why I have so many wheels to my name. No, not fancy cars, but my collection of mobility aids. I take no shame in needing all these, as each and every one has a different purpose. Related: Mummying and M.E. – Life On Wheels To keep my mental […]

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Quotes I Like to Live By: Part 2

Be gentle with yourself. You’re doing the best you can.  This is part 2 of my “quotes I like to live by” series. Or “naff motivational quote number 2”.  If you haven’t yet read Part 1: “Nothing Changes if Nothing Changes” do so now. “Be Gentle With Yourself, You’re Doing the Best You Can” is […]

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