Grief and M.E.

I’m writing this article from my bed. I’m lying down flat, unable to sit up without overwhelming dizziness. It’s sunny outside, my daughter and hubby are running around enjoying the fresh air. I so desperately wish I could join them. I hate missing time with my family. But unfortunately, that’s not going to happen today.  […]

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Life with M.E. – A Post for M.E. Awareness Week

This is a post written originally for PosAbility Magazine, published 11th May 2020 to coincide with M.E. Awareness Week. I had very much intended to write a separate blog post for M.E. Awareness Week but with the extra energy levels needed to keep our toddler entertained during lockdown, and the subsequent crashes, worse than normal, […]

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BOOK REVIEW: Supercharged Superhero by Gemma Everson

Back in November 2019, I was contacted by Gemma Everson. An author, wife, and mother, she had written a book – Supercharged Superhero – a story of her family coming to terms with M.E. The book was written for children but at the same time explained an illness, fraught with misconceptions, to adults too.  Gemma […]

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Slimming World with ME/CFS

Disclaimer: I am NOT affiliated with Slimming World. I simply attend (virtually at the moment) each week, follow the programme and it’s amazing. I simply wanted to share what it’s like!  Disclaimer number 2: I would class my M.E. as moderate or 40-50% on the M.E. Association’s Disability Rating Scale. In no way do I […]

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A Letter to My Nearest and Dearest

To my wonderful friends and family (you know who you are),  I want to attempt to say thank you to you all but also sorry at the same time by writing this open letter. I’m not entirely sure I’ll manage but here goes. For those who haven’t met me in person but have supported me […]

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“Mum Guilt” with Chronic Illness

Mum guilt is one of those things that the majority of mums live with. We seem to worry about every aspect of our child’s upbringing. Are we feeding them the right things? Are they watching too much TV? Are we stimulating them enough or even too much? Mum guilt almost seems to be a rite […]

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Hiring a Wheelchair

(AD: This post is sponsored by Mobility Hire at http://www.mobilityhire.com. Mobility Hire are the UK’s Number 1 supplier of mobility equipment on both short and long term hire nationwide.) Hiring a wheelchair is something you don’t often see written about in the public domain. Most people have purchased their wheelchairs, whether they be manual or […]

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Parenting and Pacing

Parenting and pacing. 2 words that really sound like they shouldn’t go together. How on earth does one learn to pace oneself as a parent with ME CFS? Parenting is tiring, there’s no doubt about that. It involves a lot of energy. How do you ration the *limited* energy you have as a chronically ill […]

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Why Christmas May Not Be the Most Wonderful Time of the Year

Warning: this post may come across a bit Scrooge-like. If this offends you, stop reading here.  “It’s the most wonderful time of the yearWith the kids jingle bellingAnd everyone telling you be of good cheerIt’s the most wonderful time of the year…” Andy Williams As we go about our daily business in the month of […]

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Toxic Positivity – Why is it so dangerous?

I’ve been meaning to write this blog post for a while but never quite had the words. Hopefully the words below make sense! I’m posting this in December but it’s got nothing to do with Christmas. Although, saying that, the sentiments could definitely be applied to the festive season.  Related: Mummying and M.E. – Surviving […]

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